A blog to explore the rare genetic disorder Beals Syndrome
Saturday, 15 September 2012
Last night we had to have Evelyne's cast removed. The last 4-5 days she had started complaining of pain and discomfort. It was particularly when I picked her up, sitting in chairs and she had also started sleeping on her front. Looking at the cast, it appeared that it may have shifted position. After a discussion with the hospital physiotherapist we realised it was highly probable she had developed a pressure sore.
We had it removed at our local Emergency Department to find that unfortunately she did have a pressure ulcer on her spine. I'll head back to Sydney to see the doctor in spinal clinic Tuesday to decide the next plan of action.