A blog to explore the rare genetic disorder Beals Syndrome
Monday, 24 October 2011
In the recent school holidays we had the opportunity to use a friend's time-share unit for a week. It was wonderful to have a restful family holiday. We do spend quite a bit of time visiting family etc but it is usually related to doctors visits and various clinics.
Samuel loved fishing, going out on a boat, swimming in the pool. Evelyne enjoyed the beach and the pool. It's hard to imagine her being in a cast soon and having to avoid some of these things she loves so much!