'Normal' Life. 6 months in the life of Evelyne - end of 2019

I wrote most of this post before the global pandemic we are now in, but found it still in my drafts. So bear in mind, this was all from the end of 2019.

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I've had a number of people ask what life is like for Evie now.

As I've previously written, life was hard in the early days. Casts, braces, the unknown.
Life is so different now. Not always easy, but so much better.

Evie loves dancing, singing, performing. We discovered she can do all these things through our local Junior Theatre Company. She danced up a storm in her year 5/6 dance group in the local eisteddford, coming 2nd, and performed in the combined school choir at the Sydney Opera House.

There are, of course, still some difficulties
- 60% lung capacity means it is difficult sometimes to clear the chest when she gets sick, and we still resort to the nebuliser most winters.
- she has other joints that can be problematic such as her knees. This last year she has had a number of subluxed patellas (where her knee cap slips out of place, then back in again)
- as well as the regular lengthenings and xrays.

She rounded off 2019 being badged School Captain for 2020. A great achievement!