The time has come!
At Evie's lengthening last year her rods were reluctant to lengthen. After a check of her bone age and growth plates the surgeon informed us that the time had come for Evie to have her final spinal fusion.
Today we headed to Sydney for the surgery Monday afternoon.
It will involve removing the current Magec rods, then placing 2 x new rods, fixing them to her spine at multiple points and fusing her spine in place. It will mean no more growth for her spine, however the rest of her body may still lengthen.
It is bitter sweet. It is a very daunting prospect to have such a large and intensive surgery, for both Evelyne and I. However it also means no more lengthenings and no more surgeries.
For 7 years Evie was casted and braced to hold off for her first surgery. We were told we would only get about 5 years out of growing rods before her spine would spontaneously fuse so we tried to wait as long as possible. She managed through 7 years of Magec rods, with 3 sets of rods and 24 lengthenings. We are incredibly grateful she had no complications in all that time. Her surgeon says she is one of his top success stories!
Whilst we are both a bit of an emotional mess, it is a comfort to know we have a God who cares and has a plan for us. We hold close to that knowledge at this time. Evie's favourite verse is the one below:
"Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus." Phillippians 4:6-7
No comments:
Post a Comment