It was an
ordinary day at the park with Evelyne doing an ordinary activity for a 9 year old
– climbing on monkey bars.
It ended with her on the ground, an obvious serious injury and a Triple Zero phone call for an ambulance. Leading to transport to another hospital, a 'closed reduction' in theatre under general anaesthetic, 3 days in hospital getting pain under control, 2 weeks in a traction cast and a further 4 weeks in a shoulder immobiliser sling. The positive news was that her spinal rods were not impacted!
It ended with her on the ground, an obvious serious injury and a Triple Zero phone call for an ambulance. Leading to transport to another hospital, a 'closed reduction' in theatre under general anaesthetic, 3 days in hospital getting pain under control, 2 weeks in a traction cast and a further 4 weeks in a shoulder immobiliser sling. The positive news was that her spinal rods were not impacted!
It’s one of those difficult questions parents with
Beals kids (and others) will face. How much do we protect and wrap in cotton wool, and how
much do we let them go and be normal kids? It is a balance I’ve struggled with
over the years. Sometimes I think I’ve restricted her too much due to worrying
about injury. But the fact is, she is going to be at a higher risk of all sorts
of injuries. Joint injury and dislocation, risk to damaging spinal rods, and it
appears broken bones as well. At school she is not allowed on the play equipment, is restricted from many sports activities and has an aide to watch her in the playground. This has made it hard for her over the years, as she at times comes home from school upset that she was left out of the action. At home, we are slightly more relaxed, and really just ban trampolines, bouncing castles, and I may add monkey bars to the list.
Whilst I’ve never had definite confirmation, it does appear
that Beals Syndrome is associated with lowered bone density. One study I read said 'generalised osteoporosis is well documented'. Many years ago, another Beals mum spoke of
bone density testing, so I had Evelyne’s checked. At the time her results came
back as normal. Apart from some minor reduction in the spinal column, but that
was explained by lack of use as it was in the days of her being in casts and
braces. From my reading, bone density can often be lower in individuals with reduced physical activity, reduced strength activity, low body weight and small frames and that physical activity is widely acknowledged as a factor in increasing bone
density. So perhaps the lowered bone density in Beals Syndrome is by association with lowered activity and low body weight. Either way, it still brings me back to the same conundrum.
