tag:blogger.com,1999:blog-5667339161815992951.post5706506610149001312..comments2023-09-15T14:57:49.626+10:00Comments on Life with Beals: Busyness and daily strugglesLouisehttp://www.blogger.com/profile/06074191041723684504noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-5667339161815992951.post-62496314213546690092014-06-01T14:40:40.748+10:002014-06-01T14:40:40.748+10:00Hi Shelley,
I have sent you a google message on yo...Hi Shelley,<br />I have sent you a google message on your profile. I'm not quite sure how to get in contact with you. Would love to talk/email etc.<br />LouiseLouisehttps://www.blogger.com/profile/06074191041723684504noreply@blogger.comtag:blogger.com,1999:blog-5667339161815992951.post-89423872686796173292014-05-29T21:12:55.287+10:002014-05-29T21:12:55.287+10:00Hi my baby is being tested for beals. Would be gre...Hi my baby is being tested for beals. Would be great to talk to you. Thanks Shelley Anonymoushttps://www.blogger.com/profile/11797624365849742706noreply@blogger.comtag:blogger.com,1999:blog-5667339161815992951.post-34016389119328414212013-12-20T06:51:35.504+11:002013-12-20T06:51:35.504+11:00Hello, my name is Jasmine and I am from New Zealan...Hello, my name is Jasmine and I am from New Zealand. I am 29 years old and just this past week I have received the results of my genetic tests... I too have Beal's syndrome. Thank you so much for your blog... I just came across it while searching to find if we have any support groups here in New Zealand but it looks like the closest support groups are in Australia :-( It's very interesting to see how other people live their lives with Beal's - you have a great attitude which makes all the difference! I have just written my story on my blog yesterday... feel free to read it :-)<br />http://splattersofpaint.blogspot.co.nz/2013/12/genetic-test-results-my-story.htmlJasminehttps://www.blogger.com/profile/11541576778348528590noreply@blogger.comtag:blogger.com,1999:blog-5667339161815992951.post-71041605425574430522013-09-06T21:26:55.979+10:002013-09-06T21:26:55.979+10:00Thanks for sharing Lou. You have a great attitude...Thanks for sharing Lou. You have a great attitude, you really do!<br />You are so servant hearted, and do things without complaining, and that sets a massive example (and challenge) for me as I struggle with chronic illness. You do a great job of doing it all without complaining, and God is working in and through you, and that is something to be thankful for. <br />Love to you, Jon, Sam and Evelyne xxTheresehttps://www.blogger.com/profile/05818799193691122612noreply@blogger.comtag:blogger.com,1999:blog-5667339161815992951.post-44203381823642058822013-08-31T21:38:54.115+10:002013-08-31T21:38:54.115+10:00Thanks for posting this Lou; it's very honest....Thanks for posting this Lou; it's very honest. We're conscious of just how many things there are to juggle in your life, and the challenges when Evelyne struggles. Your Mum and I are so thankful that Evelyne is such a remarkable and feisty little girl, and that you are such a great champion for her, ensuring that she gets the best treatment and support. And by the way, you forgot to mention that most of the medical visits are 3 hours away and you need to leave Jon and Sam for 2-3 days at a time. Trevor Cairneyhttps://www.blogger.com/profile/10743409298855125040noreply@blogger.comtag:blogger.com,1999:blog-5667339161815992951.post-86373711171805665992013-08-31T18:14:45.270+10:002013-08-31T18:14:45.270+10:00I hear ya!I hear ya!Alisonhttps://www.blogger.com/profile/09793960049542281502noreply@blogger.com