tag:blogger.com,1999:blog-5667339161815992951.post5352910165187321734..comments2023-09-15T14:57:49.626+10:00Comments on Life with Beals: Another winter, another castLouisehttp://www.blogger.com/profile/06074191041723684504noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-5667339161815992951.post-30162273028321951082016-03-26T14:10:29.952+11:002016-03-26T14:10:29.952+11:00Hello, my name is Renee and I'm from New Zeala...Hello, my name is Renee and I'm from New Zealand. I was diagnosed with Beals at age 3 and I am now 31years of age. Back when I was diagnosed there wasn't a lot of information in regards to this syndrome and it's only been in the past 2 years that I have tried to research what exactly it is. I had an operation when I was 5 and they put a steal rod in my back as it started to curve. I had to wear a back brace for 1 year. Although I was never wheel chair bound I feel for your daughter. Beals is very noticeable in me as I am lop sided. Although I lean to one side it hasn't prevented me from doing anything. I was extremely lucky I was able to get that operation so early on. Besides that first operation I have had no serious problems and my back can get sore occasionally if I stand too long but other than that I am fine. It was a long road when I was young but it does get better. I will pray for your daughter and if you need any questions answered feel free to contact me. renee_andrew23@hotmail.comAnonymoushttps://www.blogger.com/profile/00811872371177169196noreply@blogger.comtag:blogger.com,1999:blog-5667339161815992951.post-47479951224052356232014-09-09T01:52:50.048+10:002014-09-09T01:52:50.048+10:00Hello, there has been a while since we heard nothi...Hello, there has been a while since we heard nothing about Evelyne. Is everything ok and going as it should? All the best.Luíshttps://www.blogger.com/profile/17942708213570261736noreply@blogger.comtag:blogger.com,1999:blog-5667339161815992951.post-60273145683415077422014-07-28T12:38:21.071+10:002014-07-28T12:38:21.071+10:00Hello! I'm so glad I've found this blog. M...Hello! I'm so glad I've found this blog. My name is Macarena and I'm from Chile (sorry if my English isn't perfect hahah), and I was diagnosed with Beal's Syndrome when I was about a month old I believe (I'm about to turn 21 now). It's so great to see parents that care so much about their daughter! I've personally been through wearing casts, physical therapy, surgery, and more, but as of right now I'm living my life pretty much as any other girl my age when it comes to this whole thing :). I just want you guys to know that there is hope! You can contact me if you ever want to talk/need anything. M.https://www.blogger.com/profile/03252188942733669121noreply@blogger.comtag:blogger.com,1999:blog-5667339161815992951.post-81027215992516713092014-07-23T17:37:10.050+10:002014-07-23T17:37:10.050+10:00Hello, is everything going well? I have been check...Hello, is everything going well? I have been checking and no news since a while. I hope everything is ok. All the best to Evelyn and the family! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5667339161815992951.post-22371281395454887352014-06-14T20:37:11.514+10:002014-06-14T20:37:11.514+10:00We pray for lovely Evie , god bless her.We pray for lovely Evie , god bless her.Anonymoushttps://www.blogger.com/profile/17493164865422663869noreply@blogger.comtag:blogger.com,1999:blog-5667339161815992951.post-27690090884857954512014-05-12T09:18:14.138+10:002014-05-12T09:18:14.138+10:00She's a little trooper (as my Dad would say). ...She's a little trooper (as my Dad would say). I just love her determination, patience and spirit. We're praying too that the cast can stay on as long as possible. Love DadTrevor Cairneyhttps://www.blogger.com/profile/10743409298855125040noreply@blogger.com